Three focus areas, one centre
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Rare cardiac disease
Diagnosis and long-term care for uncommon structural heart conditions.
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Rare cardiac rhythm disease
Inherited arrhythmia syndromes, from diagnosis to family screening.
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Rare cardiomyopathy
Genetic cardiomyopathies, with cardiogenetic counselling for relatives.
- 1 200+ Patients under care
- 18 Active studies
- 5 Regional partners
Information that starts with your situation
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For patients & families
What your diagnosis means, what to expect, and who to contact.
Patient information -
For healthcare professionals
Referral criteria, diagnostic work-up and second opinions.
Referral information -
For pharmaceutical partners
Our research capacity, registries and collaboration routes.
Collaboration
Knowledge without borders
Through the European Reference Networks, specialists from 27 countries share what they know.